Wednesday, February 12, 2014

Make - A - Wish

Although we try to see the silver lining in Ainsley having cancer, the truth is cancer is still a very dark cloud.  But one of the bright lights of this experience has been Make A Wish.  They are such an amazing foundation.  They have let us be a part of some very fun activities that let Ainsley and the girls forget the harsh reality of cancer.  Over the summer, Ainsley met her two wish coordinators, Lindsey and Amy.  They are such sweet girls.  They asked Ainsley what her wish would be if she could have or do anything.  She told them, "I want to feed Pluto biscuits!" (And if Mickey didn't have any biscuits, she would bring some of Mavis and Lila's biscuits:)  So, Disneyworld?!  I love how unique Ainsley is!  
We were able to go to Disney on Ice in September!  Ainsley and the girls had an amazing time!

I love that Ainsley is looking up at Mickey!

This is Erin!  She is one of the amazing angels at Make A Wish!

In October Amy and Lindsey dropped off a little surprise for Ainsley!  It was so fun because we had just finished up a four night stay at the hospital, and Ainsley and I were ready for some excitement!  
Ainsley got a basket of fun with a sign that said, "Ainsley, Your wish to go to Disney World will come true in February!"

   

The Milk Man

So, I wanted to just write a quick update.  Ainsley has been doing really well the past few weeks.  At the beginning of January she got a stomach bug, but other than that she has been very healthy!  Tender mercy:).  Ainsley was able to begin the next phase of treatment called maintenance.   We now go to clinic every other week and she takes a variety of chemo drugs at home.  It has been a welcomed change!  Although I was joking that I think I have a little bit of post traumatic stress disorder.  I think you just put your head down and keep going, and when things start to slow back down you realize you probably haven't dealt with all the emotion that comes with cancer.  One day at a time....

Ainsley is getting a lumbar puncture today (just finished).  Daddy got to take her there, and then Mommy and Hudson joined after taking sisters to school. We are so grateful for propofol!  It's the white "milky" medicine that they give her through her port that makes her fall asleep.  The anesthesiologist has become known to Ainsley as 'the milk man.'  

Last  month Ainsley was a little loopy after waking up from her spinal tap.  When the anesthesiologist came in to check on her she sat up and said, "Are you my milk man?"  He said, "yes"!  She then said, "You are SO cute!"  It was hilarious to see the doctor's face turn bright red!  I sure love the spice Ainsley brings to every day!!!